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Finding the Light in Dementia:: A Guide for Families, Friends and Caregivers

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Just like in real life we are all different and there is no one way to describe the effect of the illness or how best to treat those who suffer from it. That makes Dementia Care difficult but getting it right is essential and ‘Finding the Light in Dementia’ goes a long way in doing just that. I cannot stress highly enough just how important a contribution this book will make. Dr Andy Woodhead Develop other Finding the Light in Care training: for example, for people living with Parkinson’s disease, stroke and more. There is much we can do in stages to get this platform up and running thanks to the selfless help from creative souls such as Tom Tremayne, Jim Rich Film, Julia Powell and Kathryn Davies. So any pledges now are welcome to help build the videos and podcasts. I’m just a carer”. I have heard carers say this time and time again, but at Finding the Light in Dementia Care™ we will highlight the exceptional skills, knowledge and attitudes it takes to care for people living with dementia well, throughout all stages of their condition. This includes Alzheimer's disease, and the rarer types of dementia such as Lewy Body dementia, Frontotemporal dementia and Posterior Corticol Atrophy. Finding the Light in Dementia Care™ will raise the profile of social care.

Lesley Butcher, Lecturer in Adult Nursing, Cardiff University, previous Dementia Care Home Manager - Jane's enthusiasm for 'Finding the Light in Dementia Care' comes from a place of humanity and a genuine desire to help and support people affected by dementia. Jane Mullins is a professional, who is passionate about caring for people who are living with dementia & supporting those who care for them. This extends to not only the loved one's of people with dementia, but also staff who work in the industry. Jane's kindness & compassion for people is evident. Although she has valuable experience, knowledge, & qualifications in the field of Dementia Care, she approaches her work from a 'human' perspective. Her empathetic nature & non-judgmental attitude make her approachable. This is an asset in relation to teaching; learners can feel relaxed & at ease.

If you have a young family you are undoubtedly going to be concerned about how the diagnosis will impact on them. Whilst the news is distressing, children and teens may actually be relieved to know that their loved one’s behaviour is caused by a disease and that they are not the cause. It is better to be open and honest with them so they can continue to feel trust towards you and they may very likely learn how to manage their emotions more effectively when you all pull together. Make sure that you explain to them about the diagnosis in a calm way and give some simple examples of how the dementia may affect your partner, such as forgetting names and losing words. Remember it is important to remind them of all that your partner is still able to do, so that you do not all focus too much on their difficulties. Give them plenty of hugs and reassurance and give them the opportunity to ask questions at all times and to express their feelings. Getting them involved in activities will help them stay connected to your partner and help them feel a sense of usefulness. Focus on what they can do.

Mullins, J.M., Tales, A., Musselwhite, C., Rich, N., 2022, “Rekindling couplehood” using a multisensory suitcase of memories: A pilot study of people living with moderate dementia and their partners, Ageing & Society.Whether you’re a family caregiver, health and social care professional, volunteer or member of the public who wants to understand more about Alzheimer’s disease and other dementias, Finding the Light in Dementia can help you.

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